ME/CFS Awareness Day May 12
Posted in Notes on May 8th, 2012This drawing is a protest at the failure of the medical profession – with a few notable exceptions – to care for the needs of people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Words are powerful and they have been used to trivialise the suffering and diminish, and disguise, the impact of the illness. This acts to further isolate those affected from the community, and in some cases discourage them from seeking even symptomatic relief. Categorising an illness by one of a myriad of symptoms is as ludicrous as labelling heart disease ‘Dizziness Syndrome.’ Oncologists Professor Olav Mella and Øystein Fluge M.D, when discussing CFS stated that, ‘When we have cancer patients that are as sick as many of these patients are, they have a very short life expectancy. That says a lot about the quality of life for many of them’ (Eiksdal, 2011). Most don’t die so the suffering is ongoing and can last for decades.
This situation has forced many patients to become their own advocates. To assert their right to be treated with respect, and to call for high quality research that will provide answers, and an effective treatment. They have become what Bernie S. Siegel M.D. calls ‘exceptional patients,’ something he believes is necessary in the fight against cancer (Siegel, 1990).
This drawing also recognises the comfort, care, loyalty and unconditional love provided by companion animals to those with a disability. It acknowledges a Veterinary profession that offers care – without judgement – to those same animals.
Lastly, this is a remembrance for those with CFS who have died, including those who grew so weary of the fight that they took their own lives – a ripple of consequence that touches, and perhaps implicates, us all.
Eikesdal, B. TV2, 19 October 2011. English version: Norwegian research breakthrough can solve CFS-mystery. viewed 7 May 2012, <www.tv2.no/nyheter/innenriks/english-version-norwegian-research-breakthrough-can-solve-cfsmystery-3615631.html>
Siegel, B.S., 1990. Love, Medicine and Miracles. New York: Harper Collins.





